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For Patients

The Pain Research Forum does not provide medical advice, promote any product or service, or make physician referrals. The contents of the site are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment.

 

If you are a patient, you can find more information at the sites listed below.

 

If you are a patient advocacy or support group, or support pain research, please email the PRF to add your organization to this list. We especially welcome listings from organizations outside the US and international organizations. 

 

General Information:

 

National Institutes of Health

http://health.nih.gov/

 

NIH Health Topics A to Z

http://health.nih.gov/see_all_topics.aspx

 

Mayo Clinic Health Information (contains adverstisements)

http://www.mayoclinic.com/health-information/

 

Pain and Disease-Specific Information, Support and Advocacy Groups:

 

American Chronic Pain Association


www.theacpa.org

 

Arthritis Foundation


www.arthritis.org

 

Campaign to End Chronic Pain in Women

http://www.endwomenspain.org/ 

 

Solve ME/CFS Initiative (formerly the Chronic Fatigue and Immune Dysfunction Syndrome Association of America)

http://solvecfs.org

 

Endometriosis Association

www.endometriosisassn.org 

 

The Facial Pain Association

http://endthepain.org/

 

International Foundation for Functional Gastrointestinal Disorders

http://www.iffgd.org/

 

Interstitial Cystitis Association


www.ichelp.org

 

Isaacs Syndrome/Neuromyotonia World Information Forum

http://isaacsyndrome.proboards.com/

 

The Leukemia & Lymphoma Society


www.leukemia-lymphoma.org

 

The Neuropathy Association

www.neuropathy.org

 

National Organization for Rare Disorders

http://rarediseases.org/

 

National Fibromyalgia Association


www.fmaware.org

 

National Headache Foundation

www.headaches.org/

 

National Institutes of Health (NIH) Pain Consortium

http://painconsortium.nih.gov

 

National Vulvodynia Association

www.nva.org

 

Pain Connection

www.painconnection.org

 

Patient Advocate Foundation


www.patientadvocate.org

 

Reflex Sympathetic Dystrophy Syndrome Association


www.rsds.org

 

Sickle Cell Disease Association of America


www.sicklecelldisease.org

 

The TMJ Association

www.tmj.org

 

U.S. Pain Foundation

www.uspainfoundation.org

 

Other Resources:

 

Pain Maps

http://www.painmaps.com

 

PainScience.com

www.painscience.com

 

The Therapy Directory UK

www.therapy-directory.org.uk